QUESTIONS APPRECIATED.... PARENTING ADVICE NOT
My oldest, Jarrod, who is 11 has Fragile X. Within the last year, he was also diagnosed with Autism. What seems to be more of a challenge than most things is just dealing with the behaviors caused by Fragile X.
There are many things which contribute to what I refer to as a "meltdown". It could be the bright lights in a grocery store, a crowded place, a noisy place, a strong smell. Kids with fx are often times in a state of hyperarousal--a state of anxiety which usually produces a "flight" or "fight" reaction. Imagine being in the grocery store when Jarrod is in a state of...
BEING A BROTHER ISN'T ALWAYS EASY
Jordan is the absolute best brother, even though at times it can be quite a challenge! Though Jordan is only 8, he is much wiser beyond his years. Growing up with a special needs brother has taught Jordan that everyone is different and that being different is okay!
As a mother, it has been quite a journey; one that twists and turns every day and with each twist and turn I am learning something new. As they say "never a dull moment."
I hope that when Jordan gets older he can look back and realize what an impact he made on his brother's life.
This time of every year brings me back to "D" day. "D" Day means the day my oldest son was diagnosed with Fragile X Syndrome. It was 8 years ago, but it seems like just yesterday. That day in late March when my world came crashing down around me. Fragile what? I had never heard of this, as the geneticist matter-of-factly informed me on the phone that my child was affected by Fragile X and that I was the carrier of the gene. Prior to Jarrod's diagnosis I had become pregnant with my second child, who was then 5 months old. The geneticist then went on to explain that my younger son...